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"Contents" [2019] ELECD 901; in Minssen, Timo; Herrmann, R Janne; Schovsbo, Jens (eds), "Global Genes, Local Concerns" (Edward Elgar Publishing, 2019) v

Book Title: Global Genes, Local Concerns

Editor(s): Minssen, Timo; Herrmann, R Janne; Schovsbo, Jens

Publisher: Edward Elgar Publishing

Section Title: Contents

Number of pages: 2

Extract:

Contents

List of contributors vii
Introduction ix

PART I BIOBANKS, BIG DATA, AND MODES OF
COLLABORATION

1 Big Data and the ethics of detail: the role of ethics work in
the making of a cross-national research infrastructure for
genetic research 2
Klaus Hoeyer, Aaro Tupasela, and Malene Bøgehus Rasmussen

2 Biobanks as knowledge institutions 22
Michael J. Madison

PART II BIOBANKS, TRANSLATIONAL MEDICINE,
AND TECH TRANSFER

3 Biobanks as innovation infrastructure for translational medicine 42
W. Nicholson Price II

4 Responsible use of human biosamples in the bioscience industries 56
Brian J. Clark and Tina Bossow

PART III THE INTERFACE OF BIOBANKS, HUMAN
RIGHTS, AND PATIENT INVOLVEMENT

5 Biobanking, scientific productions and human rights 73
Peter K. Yu

6 You told me, right? Free and informed consent in European
patent law 92
Åsa Hellstadius and Jens Schovsbo

7 Dynamic Consent and biobanking: a means of fostering
sustainability? 117
Jane Kaye and Megan Prictor

v
vi Global genes, local concerns


8 Generating trust in biobanks within the context of
commercialization: can Dynamic Consent overcome trust
challenges? 130
Esther van Zimmeren

9 Exploitation and vulnerabilities in consent to biobank
research in developing countries 156
Nana Cecilie Halmsted Kongsholm

10 Biobanking and the consent problem 173
Timothy Caulfield and Blake Murdoch

PART IV BIOBANKS, GUIDELINES, AND GOOD GOVERNANCE

11 Responsible research and innovation and the advancement of
biobanking and biomedical research 186
Helen Yu

12 Do we need an expiration date for biobanks? 216
Franziska Vogl and Karine Sargsyan

13 Biobanks ...